7K Run/Walk details

Washington DC Area Racefor7 Run 2019 Information

Date: Sunday,Feb 24th, 2019

Venue: The National Sylvan Theater at Washington Monument, Washington DC: Independence Ave SW & 15th Street NW, Washington, DC 20024

Bib and T-Shirt Pick-up

Virginia: TEZ Restaurant, 13005 Worldgate Dr, Herndon, VA

  • Feb 22 (Friday): 5 PM to 7 PM

Maryland: Buffalo Wild Wings, 668 Clopper Rd, Gaithersburg, MD

  • Feb 22 (Friday): 5 PM to 7 PM

Please note:
Every registered adult (over 18 years) participant will receive a RaceFor7 branded T-shirt and a bib for the race. Every child registered (under 18 years of age) will receive a RaceFor7 branded cap. There will be a winner medal for everyone that completes the race. 

Event Day Parking, Arrival and Entry

Parking is extremely limited and not convenient at the venue. Metro train ride to Smithsonian is probably most convenient option and recommended. If you choose to drive, plan to arrive early find a safe street parking on the Constitution ave or other streets close to the Washington Monument and walk up to the venue. We will have a table presence on the Sylvan Theater stage for a brief address by the chief guests.

ONLY Pre-registered participants on online registrations at www.racefor7usa.com are allowed into the event. Onsite registrations will NOT be available.

Racefor7 Washington DC Event Schedule

8:00am – 9:00am: Sign in desk / Stage Setup

8:30 am – 9:00 am: Warm Up Sessions by Stephen Bilko, UNDCA

9.00am – 9:40 am: Welcome by emcee Rajesh Gooty, UNDCA

Speakers will include:

 – Patients and Patient Advocates,

 – Harsha Rajasimha, MS, Ph.D., Founder and Board Director of Organization for Rare Diseases India, USA

 – Legends of Rare Diseases – Key Message to the Community

  • Marshall L. Summar, MD Chief Guest – Director, Rare Disease Institute, Childrens National Medical Center, Washington DC; and Chairman, Board of Directors, National Organization for Rare Disorders (NORD)
  • Frank Sasinowski, MS, MPH, J.D., Vice-Chair, EveryLife Foundation (and former Chairman for 7 years, NORD)
  • Stephen Groft, Pharm.D., Co-founder Board Member of ICORD (Former Director of the Office of Rare Diseases Research, NIH)

 – Youth Ambassador for rare diseases Miss India DC Anagha Sreenivas, and

 – Other Community leaders

9:45 am – 9:59 am: Line Up for Race Flag-Off by the Chief Guest Dr. Marshall L. Summar, Chairman, Rare Diseases Institute and National Organization for Rare Disorders (NORD)

10:00 am:  Flag –off time Race Begins

10:00 am – noon:   Finisher Medals, Selfies, Youth Ambassadors, Rare Diseases Information Desk, Networking, Refreshments

For any special requests for accommodation, for volunteering, or to request exception of any kind, contact:

Event Management Team, Racefor7, ORDIUSA

Organization for Rare Diseases India, USA

13687 Neil Armstrong Ave Herndon VA 20171 USA

Email: usa@ordindia.org / usaliaison@ordindia.org

Mobile: +1 540.239.046 / +1 571.294.5913