Rare disease racers speak out, stand tall at Racefor7 events in the U.S. and India

Washington, District of Columbia – 03/04/2019 (PRDistribution.com) Visibility, speaking out, courage and organization. Forty years ago, these were the things that brought the Orphan Drug Act to life. On Sunday, February 24, across the U.S. and India, over 7,000 supporters gathered in the same passion: speaking out and bringing visibility to the more than 7,000 disorders collectively known as […]

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Thousands marching against rare diseases; Still time to join Racefor7 2019

WASHINGTON D.C. – 02/13/2019 (PRDistribution.com) The Racefor7 Rare Disease Day run on Sunday, the 24th February is approaching the starting mark. Will you be joining them?   Traveling from Birmingham, Ala. to D.C., Swapna Kakani will be there. She is intimately aware of the struggle for patients with rare diseases; She is one herself battling a rare disease called […]

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The Racefor7 to Beat 7,000 Known Rare Diseases is On

A Global Approach to Advancing Drug Development for Rare Disease February 13, 2019 Runners in cities in the U.S. and India will join together in the Racefor7 event on February 24. This annual 7K is held to raise awareness and empower patients with rare diseases in their quest for effective treatment options. “We will form […]

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Support for 2019 Racefor7USA Rallies Growing, Includes Summar, Jagadeesh; Still Needs You

WASHINGTON – 01/24/2019 (PRDistribution.com) Rare disease research needs global support. So, too, do the events planned for Rare Disease Day, 2019.  On Sunday, the 24th February, 2019, the Organization for Rare Diseases India in USA(ORDIUSA) and the Organization for rare diseases India (ORDI) are holding Racefor7 in the U.S. for the third year in a row. The 7-kilometer walk/run was […]

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Racefor7 Brings India, United States Closer by Honoring Patients with Rare Diseases

WASHINGTON, Feb. 6, 2018 /PRNewswire-USNewswire/ — On Sunday, Feb. 25, 2018, the Organization for Rare Diseases India (ORDI), is holding simultaneous walks or races in Bengaluru, Mumbai, and Washington, D.C. Called Racefor7, the 7-kilometer walk highlights the 7,000 known rare diseases affecting over 350 million patients worldwide. In the US, these difficult-to-diagnose diseases affect approximately 30 million patients. An ORDI review article […]

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