Racefor7 Brings India, United States Closer by Honoring Patients with Rare Diseases

WASHINGTON, Feb. 6, 2018 /PRNewswire-USNewswire/ — On Sunday, Feb. 25, 2018, the Organization for Rare Diseases India (ORDI), is holding simultaneous walks or races in Bengaluru, Mumbai, and Washington, D.C. Called Racefor7, the 7-kilometer walk highlights the 7,000 known rare diseases affecting over 350 million patients worldwide. In the US, these difficult-to-diagnose diseases affect approximately 30 million patients. An ORDI review article […]

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Media Coverage - Race For 7 - 2016

Mainline Coverage Vernaculars- Listings Post Event Race for 7 Online Coverage 1. https://globalgenes.org/raredaily/organization-for-rare-diseases-india-celebrates-world-rare-disease-day-with-race-for-7-marathon/ 2. https://citynewsforu.wordpress.com/ 3. https://pressreleasewatch.blogspot.in/2016/02/run-for-rare-disease-patients-in.html?utm_source=dlvr.it&utm_medium=twitter

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PRESS RELEASE- Race for 7 - 2016- Race Against Rare Diseases

Race for 7- Race Against Rare Diseases Race for 7 to make the voice of rare diseases heard Bengaluru, February 19, 2016: The Organization for Rare Diseases India (ORDI), a patient centered non-profit organization today announced Race for 7, a unique first of its kind event being held to commemorate Rare Disease Day and draw […]

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NGO to organise a race to raise funds for patients with rare diseases

BENGALURU: The Organization for Rare Diseases India (ORDI) would organise Race for 7, a unique first of its kind event to commemorate Rare Disease Day and draw attention to the needs of patients with rare diseases in India. The 7km run to be flagged off on February 28 at St. Joseph’s Indian High School will […]

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Run to create awareness about rare diseases

To draw attention to the needs of patients with rare diseases in India, the Organisation for Rare Diseases India (ORDI) will organise ‘Race for 7’, a 7-km run on February 28 that is observed as Rare Disease Day. The run that will be flagged off at St. Joseph’s Indian High School in the city will […]

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